Give people with PPMS the treatment they need, MS Society campaign #SpeakupforMS

Blocking of a drug as a treatment for primary progressive multiple sclerosis (PPMS), making it unavailable for use by the UK’s National Health Service (NHS), is being challenged by the country’s MS Society. And it has coupled its opposition with a call to arms – inviting everyone to #SpeakupforMS. Holly, from the society’s campaigns community, …

Advertisement

Ocrevus blocked again, this time for PPMS, as not cost-effective

  So, news came out last week that the UK’s National Health Service will not be providing Ocrevus for treating primary progressive MS (PPMS) in England*. But, panic not, the decision is far from being set in stone. Why is this? Because the decision by the National Institute for Health and Care Excellence, (NICE), was …

MS ’50shadesofsun’ website is Back in Business

Thanks to all of you who have taken the trouble to get in touch to ask about my health, and if everything is ok generally. Well, the news is that, although there was a small health issue the week before Easter, I am fine. I realise that your concern was triggered by a lack of posts on this site …

New MS drug approval delayed by three months

People with MS who have been looking forward to the long-awaited US Food and Drug Administration (FDA) approval of the MS drug Ocrevus (ocrelizumab) are disappointed now it has been delayed. This is because, although a decision had been promised for late December 2016, an 11th-hour decision means the approval hearing has now been put …